We are committed to respecting your privacy. Because facts about a person's health, health interests, and health care are private and sensitive, we know that you may have concerns about sharing information with us. This Privacy Policy is designed to answer your important questions about privacy, whether you are a consumer looking for health information, or a health care provider mining NAAC's experience to refine your expertise in meeting the needs of your patients.

If you are a consumer, you'll want to know how we use the information you provide when you register with us as a site user or when you participate in activities on our site, and how we protect this information from unauthorized use or disclosure.

If you are a health care professional, you'll want to know what steps we take to protect the sensitive data you may choose to share with us, and how we use information you provide about yourself and your professional services.

We urge all users of our site to read this Privacy Policy to learn more about the policies and practices that we have developed to safeguard personal and health information, and to better understand our relationships with the third parties who may have access to this information.

1. Information We Collect
   
   We have access to the following categories of information regarding you and your visit to our Web site. Only some of these categories of information identify you directly, but each category offers some information about your interests and activities that could be used to make inferences about you. The next section of this policy describes how NAAC uses the information we collect.
   
   
   • Information That You Voluntarily Provide
     
     Site Registration: NAAC has constructed this Web site so that you may visit us and review information about the services we offer without revealing your identity or volunteering any personally identifying information. If you register to use NAAC features and services, either as a consumer or a health care professional, we will collect "personally identifying information" from you. Personally identifying information is information such as name, address, telephone number, and email address that could be used to contact you. When this information is combined with any information on your health or medical status, we refer to the resulting information as "health-related personal information."
     
     Interactive Services: If you choose to participate in our interactive services such as questionnaires and surveys, you may disclose health-related information as well as personal facts that could be used to identify you or your family members. Providers who use our benchmarking services and quality of care assessments may choose to disclose facts about their practice and patients that are extremely sensitive, personal data. NAAC does not request or require you to disclose personally identifying information in these forums, but apart from warning you to be prudent in your statements, we do not have the ability to keep you from disclosing private facts.
     
     
   • Information That Is Routinely Collected By Our Site Technology:
     
     IP Address. We record the Internet Protocol (IP) address of your computer when you visit our site. Without more, the IP address does not identify you personally, but it is what allows us to maintain communications with you as you move about our site.
     
     Cookies. NAAC also collects information about your use of our site through cookies and similar technology. A "cookie" is a unique numeric code that we transfer to your computer so that we can keep track of your interests and preferences and recognize you as a return visitor to our site. Cookie technology allows us to collect "clickstream" data, which is not personally identifying information, but which reflects your activities on the site, including your interest in certain health care conditions. A cookie does not collect or keep your name or other personal identifying information, but when you revisit our site the cookie allows us to bring you the content and features likely to be of greatest interest to you based on your previous activities on our site.
   
   
   
2. How We Use Your Information
   
   Whether you are a consumer or a health care professional, we use the information about your use of the services and activities on our Web sites to monitor user traffic patterns and try to analyze what our users prefer so that we can design better services for you. The personally identifying information and health-related personal information that you provide may be used to create customized offers, information, and services tailored to your interests and preferences.
   
   Personally Identifying Information. You do not have to register to use most of the information and services available on our Web site. If you choose to register, we will use the personally identifying information you give us to send you an email confirming your registration with our site and to respond to questions from you. We may also, from time to time, send you email with special promotions or newsletters with information that we think may be of interest to you.
   
   Health-Related Information. We may offer interactive services such as health questionnaires and care management tools that ask you to furnish health-related information about you or your family. The information you disclose and provide in interactive services may be linked with the personally identifying information you may choose to provide elsewhere on our site to provide us with personally identifying information about your health and health care. We may combine your health-related information with that from other site users to create summary data that we will use for our business purposes.
   
   IP Address. In addition to using the Internet Protocol (IP) address of your computer to maintain communications with you as you move about our site, we also may use your IP address to personalize content provided on the Web site. We retain IP addresses, and we retain them together with personally identifying information.
   
   Cookies. NAAC uses the data we obtain through the use of cookies to customize your site experience by anticipating the information and services that may be of interest to you. We also analyze the information collected with cookie technology to help us improve the functioning of our site by monitoring traffic in popular areas and to modify the services and information we provide to meet customer demand. We will link the clickstream data available to us through the use of cookies to the personally identifiable information and health-related information that you may choose to provide elsewhere on our site. We use the information we collect through the use of cookies for our business purposes, including operation of our site.
   
   Law Enforcement. In certain limited circumstances, NAAC may be called upon to release your personal information in response to a court order, subpoena, search warrant, law, or regulation. NAAC plans to cooperate in responding to such requests, taking appropriate measures to ensure that the requester understands the sensitive nature of the health-related personal information that they may receive. NAAC also reserves the right to cooperate with law enforcement authorities in investigating and prosecuting users who violate our rules or engage in behavior that is illegal or harmful to other NAAC users.
   
   
   
3. Our Relationship to Third Parties
   
   NAAC may use third parties to provide services and information on our site and we may provide some co-branded services in partnership with others. We also may use third parties to analyze data collected on our site. We will not disclose your personally identifying information or health-related personal information to anyone other than NAAC employees and those third parties with whom we have a business relationship. If we allow a third party contractor to have access to your personally identifying information, we will not authorize them to take it or use it for any purpose that is not consistent with this privacy policy.
   
   We pledge that we will not sell or disclose any personally identifying information or health-related personal information you provide on our site to an unrelated third party without your express permission, except as explained below:
   
   
   • Cookies. NAAC does not allow other sites or third parties to use our cookies for their own purposes or to place their own cookies on your computer when you access services through our site.
   • Vendors and Suppliers. NAAC has relationships with different vendors and suppliers who help us design and maintain our systems and our computer security, respond to email and user inquiries, and create special promotions. We will not authorize our vendors and suppliers to use our customer information for any purpose not related to NAAC business.
     
     
   Other Important Information About Our Relationship With Third Parties
   
   
   • Links to Other Sites. NAAC also features links to Web sites that we believe you might find useful and informative. Please be aware, however, that NAAC does not endorse or recommend these sites' content or services, and NAAC is not responsible for the privacy practices of these other sites. We encourage you to be aware of and read the privacy policy of each site you visit. Remember, the statements in this privacy policy apply solely to information collected by NAAC.
   • Advertisers. NAAC does not permit advertisers to display their advertisements at our site, and we will not permit third party adservers to use cookies to collect information from users at our site.
   
   
   
4. Our Children's Policy
   
   NAAC's Web site content and services are intended for adult users over the age of 13. The site is not designed to attract child users. If we learn that an under-13 user has volunteered personal or health-related information on our site, or that a provider has volunteered information about a patient who is identified as younger than 13, we will delete such information from our active databases in accordance with our deletion policy, which is described in the section on Privacy Choices.
   
   
   
5. Your Privacy Choices
   
   When you access any interactive tool or service on NAAC's Web site, you will be asked to affirmatively choose ("opt-in") to provide the requested information. You may always choose not to provide the requested information.
   
   
   • Receive email. When you register with our site, you will be given the option of receiving email with information that we think you might find useful, including promotions, announcements of new services and newsletters on particular health topics. If you decide, at any later time, that you no longer wish to receive these emails you may unsubscribe to our email list by sending an email entitled Unsubscribe to webmaster@anemia.org.
   • Accept Cookies. Your browser software can be set to reject all cookies, but if you reject our cookies certain of the functions and conveniences of our site may not work properly. Cookies and similar technologies are how we ensure that we can promptly retrieve and deliver the information to you when you use our site.
   • Correct/Update Personal Information. You may correct or update the personal and/or health-related personal information you previously provided to the Web site at any time, using the following options:
     
     
   You can send email to webmaster@anemia.org.
   
   You can write to the following address:
   
   Webmaster, National Anemia Action Council
   555 East Wells Street
   Suite 1100
   Milwaukee, WI 53202-3823
   
   
   • Remove Personal Information.
     
     You may remove previously provided personal and/or health-related personal information at any time using the following options:
     
     You can send email to webmaster@anemia.org.
     
     You can write to the following address:
     
     Webmaster, National Anemia Action Council
     555 East Wells Street
     Suite 1100
     Milwaukee, WI 53202-3823
     
     
   • Deletion Policy. The information that you provide NAAC is stored in servers that are operated and maintained by NAAC and third parties under contract with NAAC. NAAC site users should be aware that it is not technologically possible to remove from our servers each and every record of the information you have provided to NAAC. The need to back-up our systems to protect information from inadvertent loss means that a copy of information about you or your health-related interests may exist in a non-erasable form that will be difficult or impossible for us to locate. Nevertheless, we promise that upon receiving your request, NAAC will delete all personal and/or health-related personal information stored in the databases NAAC actively uses for research and daily business activities, or stored in other readily searchable media. In addition, we will use commercially reasonable efforts not to disclose any personal information stored in a non-erasable format after receiving your request for removal, except as required by law.
     
     
     • Communicate with NAAC by email. At our Web site consumers and providers may communicate with our staff to learn more about our products and services. We also offer interactive tools that enable consumers and health care professionals to submit customized email requests for information about diseases and Amgen therapies. Please be aware of the limits on the confidentiality of these email communications. NAAC will not disclose personally identifiable information that we receive in email, but all email transmissions are vulnerable to unauthorized interception. In addition, we remind you that email sent or received through an employer's computer or computer system is not confidential and may be the legal property of the employer.
   
   
   
6. Our Security Measures
   
   NAAC wants your personal information to remain as secure as reasonably possible. Our success at improving our products and services depends upon your willingness to share information about your personal health and health care with our researchers.
   
   
   • Data Security. NAAC uses encryption practices to help insure the integrity and privacy of some of the personal and health related personal information you provide to us. As an added security precaution, all personal and/or health related personal information is kept physically behind firewalls that meet or exceed industry standards to prevent intruders from gaining access. Although we will make reasonable efforts to protect personal and/or health-related personal information from loss, misuse, or alteration by third parties, you should be aware that there is always some risk that an unauthorized third party could intercept an Internet transmission, or that thieves will find a way to thwart our security systems.
   
   
   
7. Changes in Our Privacy Policy
   
   NAAC will only use personal information in the manner described in the Privacy Policy in effect when the information was collected from you. However, we reserve the right to change the terms of this Privacy Policy at any time by posting revisions to our site. If at any point, we decide to use personally identifiable information in a manner different from that stated at the time it was collected, we will notify users by email to the extent that we have your email address. You will be given the choice at that time to "opt-in" for any additional uses or disclosures of your personally identifiable information that you made available to us prior to the change in our policy.

Last Updated: May 29, 2008